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The fact that you’re struggling doesn’t make you a burden. It doesn’t make you unloveable or undesirable or undeserving of care. It doesn’t make you too much or too sensitive or too needy. It makes you human. Everyone struggles. Everyone has a difficult time coping, and at times, we all fall apart. During these times, we aren’t always easy to be around — and that’s okay. No one is easy to be around one hundred percent of the time. Yes, you may sometimes be unpleasant or difficult. And yes, you may sometimes do or say things that make the people around you feel helpless or sad. But those things aren’t all of who you are and they certainly don’t discount your worth as a human being. The truth is that you can be struggling and still be loved. You can be difficult and still be cared for. You can be less than perfect, and still be deserving of compassion and kindness.
Daniell Koepke (via creatingaquietmind)

(Source: internal-acceptance-movement)

pathea asked:

PLEASE WE NEED TO TALK I have an ongoing aura in my vision and have had migraines and such since I was 8, my entire family has migraines and aura migraines and I recieved the brunt of that in being "gifted" with auras, flashing lights, white sparkles, zig-zags, pulsing, partial blacking out, full on rainbows and a lot of other symtpoms for as long as I can remember and I've yet to talk about it to anyone with the same condition! I'd love to talk with you!

Sure we can talk anytime! Persistent migrain auras that last beyond the migraine are rare so hard to find people to talk to about it for sure. I also get a lot of varied auras that fluctuate a great deal.

Positivity In Pain: #InvisibleIllness #iiwk14 Invisible Illness Awareness Week: On chronic pain impact

September 8th to 14th is Invisible Illness Awareness Week. Almost 1 in 2 people in America has a chronic illness. Almost 96% of people who have an illness have an illness that is invisible such as chronic pain. For more statistics see Here.

For this invisible illness week awareness I would like to discuss impact. For me that is what I most consider when I think about my invisible illnesses. For example I have asthma and hypothyroidism which are both invisible illnesses but for me they are very well managed. I discuss them for time to time and they do have some impact when you look at the whole health picture but overall I cope with them very well because they are managed. On the other hand, I have chronic pain conditions of fibromyalgia, chronic migraines and peripheral neuropathy and add those together and the impact on my life is significant.

Some of our invisible illnesses can have a significant impact on our lives. And, by the way, no rule that specifies we can just have one health condition. Rather think that is uncalled for though. One should be the rule and then you are good for life. Should be in the rule book.

The impact on our lives can be seen in all facets of our life. Our divorce rate is 75% and we know the extra struggles and issues we have to overcome there. We have a higher risk of depression and suicide. Often you see stats on the cost to a country but the fact is there is a cost to Us. Education is affected as well as careers. Our income levels are affected as a result. I fought very hard to keep a career but in the end I have been on a long term leave for two years because I was not able to function working full time. We have a risk of becoming isolated. I call this the Hermit factor. It happened to me. It is a slow process that happens when we are in too much pain or too fatigued to go out, so we decline invitations, until slowly the invitations stop coming. Friends drift away and you do not have the energy to try and stop this from happening. Until you are a hermit……

There’s a couple of stages of having a chronic disease; there’s the being sick - like suddenly you’re sick and you don’t know what’s wrong. And that can be super terrifying depending on how severe your symptoms are. Then there’s the being diagnosed part which comes along with this word chronic, which inside of it hiding there is the word incurable - which no one says out loud but which is the worst word. It means, not only has your life changed, your life has changed irrevocably.
Hank Green on Living with a Chronic Disease (via doingthediagnosis)
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